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I was diagnosed in 1999, before the advent of TKI therapy but was fortunate enough to enter the Phase II trial of Imatinib. I set up CML Support in 2000 and the experience of helping other people has certainly helped me and my family cope with what is a lifelong diagnosis.
In the early days, the CML Support community helped explain my illness, armed me with knowledge so I could better talk to my doctor and provided a compassionate place to share my problems. Outside of family, it continues to provide me my single biggest support through my CML journey.
After I was diagnosed, I scoured the internet for answers to all my questions. By far the richest source of information and help was CML Support. The advice from members has proved invaluable ever since. I really don't know what I would have done without them.