Hi, was just reading the contributions re bone pain and other sides. I was diagnosed June this year, on Imatinib, and i would say ive had an array of side effects, as someone else said, not dangerously. The symptom ive had recently is very puffy eyes, i know why and how it happens , but its causing some dry, sore eyelid skin, and i know i look different, in that sense im not bothered!, but i do wear eye make up most days, and am trying to navigate these early days as normally as possible. Any advice on topical stuff please?, i dont want to consider anything else at this stage. Obviously this is a sign of wider fluid retention, but again im not too worried at this stage, no swollen ankles or anything.
Very grateful for any advice. Amanda
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Imatinib Sides
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Yes I experienced puffy eye while on Imatinib. I think it’s a common side. I also experienced extreme dry eyes but that was toward the end of my 11 year run on Imatinib. You can try adjusting your diet. I know for the dry eye, which I still have even on nilotinib, things like sweets and caffeine definitely affect the severity of the dryness. Was never able to figure out how to keep the puffiness at bay other than not eating a lot of salt in diet.
Thanks for that,much appreciated. Im hoping that a lot of the side effects reduce, or that i get used to them. I havent had children but somedays, most days i seem to get a strong craving for certain foods, if its salt, sugar or carbs i resist, but it isnt ever celery or lettuce! Weird but quite amusing , i think it may be just me. Never seen it listed as an Imatinib side. i will persevere with the eyes, many thanks.
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Bone aches and muscle pains