Hi all
I haven’t posted for a long time! Recently I was unwell and had to go to A & E. It was picked up there that I had a plural effusion in my right lung and I was asymptomatic as my breathing was fine.
However it was moderate. My oncologist looked at the scan, sent me for a repeated x ray and I’ve had to pause my Dasatinib treatment for a month now. When this resolves the plan is to try me back on a much lower dosage, I was on 70 mg trying to reduce very slowly over the last few years from 100mg as my Bcr Able counts are very sensitive to change. The plan is to try me at 20 mg to see if that can hold the counts.
If not I can change to another drug. I was originally on Imatinib when first diagnosed (2003).
Has anyone else had an effusion on dasatinib after such a long time (over 10 years) of being on it?
I’m hoping I don’t have to switch drug and the 20mg will hold my counts.
I’m very lucky to have had the same oncologist since my diagnosis and I feel confident in her care plan.
Feels very strange not taking my medication daily!
You are here
Dasatinib.. Pleural Effusion after post 10 year treatment
Since you say “A&E”, are you in the UK?
If so, you ought to qualify for asciminib as you have had trouble with 2 previous TKIs.
David.
Asciminib is the newest one that’s available on the NHS, but only to patients as a 3rd line option. Lots of people have done really well on it and find it has fewer side effects than other TKIs. I’ve certainly found that to be the case, so it’s definitely worth bringing it up with your doctor.
David.